Saturday, December 26, 2009

Xmas Slide Show!

Grandpa went home today after spending Christmas with the kids and Grandmommy and daddy are coming in so we have another round of present opening!

Still no day nurse which makes 4 days in a row and 5 out of 7. Hopefully we'll have someone tomorrow as Mom and Dad are really tired.

Thursday, December 24, 2009

All Wrapped Up

Sofia is pitching in for Christmas by wrapping up some gifts... sort of.



And for Xmas this year we have... no nurses Wed-Fri during the day. It has made things extra crazy for mom and dad.

But it will all be worth it.

And here's our Xmas card (in case you didn't get one already!)

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Sunday, December 20, 2009

Winter Wonderland

We woke up bright and early today to shovel/use the snowblower on the driveway so that our nurse could get out. We probably got 8 to 12 inches.

Daniel had his first encounter with snow. He tried to crawl in it and ended up face first in the snow which of course resulted in a few tears. He enjoyed looking at our winter landscape.


Our tree is up and the kids have been checking it out. Daniel especially likes the presents....

Wednesday, December 16, 2009

The Latest

Sofia came down with some tracheitis last week and is on antibiotics again. She is just about back to herself today.

Daniel has been giving us trouble going to bed again, and his fussy eating (especially not wanting to touch anything slimy or sticky) prompted us to see an OT who specializes in sensory issues. Daniel cried very hard when he touched the shaving cream. His eating though is beginning to improve. He now picks up rice and will let us feed him just about anything with chopsticks.

Here is a picture of Daniel at the holiday walk in town a couple weekends ago on a cold night....
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Tuesday, December 8, 2009

Getting stronger

Sofia is getting stronger and here she is sitting on her own and playing with her activity table.



We're also trying her on the passy-muir valve which forces her to breathe out through her mouth and nose with mixed success. She can go a few minutes on it but it is pretty uncomfortable for her but it is good to be able to hear her make a few sounds.

Likely though she won't be able to improve much on the valve due to her stenosis.

Thursday, December 3, 2009

It's official!

Sofia is larger than Daniel by almost half a pound!

She had been weighing in larger for the past two weeks but we don't trust our scale at home much. However today they both went in to get their second H1N1 shots and the official weigh in was:

Daniel: 17lbs 11oz
Sofia: 18lbs 2oz

Both kids also got their MMR shots so they are both a little fussy tonight.