Really Crawling!

Sofia crawled for real yesterday on her hands and knees (vs commando-style)!

Pics and hopefully videos soon to come...

Surgery Scheduled

At long last Sofia's throat reconstruction surgery has been scheduled for the end of April! The surgeons won't really know what approach to take (CTR vs LTR - see below, extended or not, multistage or single stage) until they get in there so we are in for a pretty rough ride. We're hoping for the best!

CTR (cricotracheal resection): the narrowed portion of the trachea, directly below the voice box, is removed and the voice box and windpipe are sewn back together.

LTR (laryngotracheal reconstruction): the airway is made larger by placing a graft in the area that is narrowed. Most grafts are made of ear cartilage, thyroid cartilage, or rib cartilage.

Here's Sofia as a turtle and outside in her hat. This past weekend the weather was fantastic, which almost but not really made up for the storm disaster.

Some pictures

of Sofia at the hospital play room



of Daniel smiling

Back Home

We're back after hearing that the power company will not shut off our power any longer. We've still got a bone to pick w/ Connecticut Light and Power for completely disregarding the fact that Sofia needs power to survive and having absolutely no communication or information for us. If anyone has any political connections let us know, we need to complain loudly!

No power!

So we finally got hit by the power outages that have devastated the area. We think the power company took down our power to do repairs BUT if so they didn't notify us (or the EMS/police) even though we have a medical waiver filed. ETA is of course unknown but supposedly the whole town will be back by midnight tonight. yeah right.

We have no power which means no heat, lights or equipment so we checked Sofia to the local hospital just in case.

More Walking

and a little falling!

Bathtime

Daddy was making pizza yesterday evening in the kitchen so Daniel got to take a bath in the big boy tub. He had a fun time playing with his toys.

I'm walking!

Daniel has gotten over his hesitancy and is now walking all over the place!



Sofia is commando crawling and is just about capable of real crawling but isn't really doing it yet. Any day now...

Double Trouble Slideshow

Daniel and Sofia....

Warm day!

This is the first nice weekend we've had in months so Daddy and Daniel went outside to play. Here's Daniel posing and playing with the rocks. He's been a little cranky recently after his 18 month shots and he's been waking up WAY too early for us. Hopefully things will get better when the clocks change. Mommy is also trying all sorts of food to try to get him to eat more, he is still 19 lbs or so and really needs to catch up to his sister!







Sofia is home and doing fine. She had her CT scan and we are due to meet with the surgeon to figure out what he wants to do for her surgery and most importantly when it can be done! The sooner the better as she is scooching along (not quite crawling forward) and very active and happy.