Playing with Mom

Here is Sofia playing with a new little toy.

Surgery day confirmed May 3

We're pretty much confirmed for surgery next week for Sofia so everything now is all about getting ready to spend the next few weeks in Philly while Grandma takes care of Daniel at our house. Most important thing is for Sofia to stay healthy so we're on lockdown here with no extraneous visitors or trips outside. There's a lot we need to pull together to get ready but hopefully this is the LAST time!

Getting ready

We are gearing up for our next trip to Philly and Sofia's latest big surgery. She's had a bit of a cold so has been on the passy primarily and in general has been very fussy and throwing tantrums when she doesn't get her way. She's also quite hooked on the Olivia cartoon which is what she keeps asking for! Daniel is singing up a storm and nowadays sings the "Doe a Deer" at least once an hour!

J tube girl again!

We went on Mon to Yale to have another J tube put in. It is all because they want to eliminate any chance of reflux right before and for some time after her surgery. However this time she can continue on eating some soft foods PO which will help.

Unfortunately between the J tube (which leaves her tummy empty and has her wearing her backpack again all day), the hot weather, and still having a cold she was really cranky yesterday at school and we got a bad report of her acting out and hitting teachers. She was also bad with mommy at home.

At least she can get it all out of the way before our preop visit next week to CHOP.

Potty Progress

Sofia had a day with NO ACCIDENTS yesterday. She is really making potty progress. It is harder for children that are fed through g-tubes to potty train but with this second go-around she is getting it.

Stitches

Daniel slipped off the stool in the bathroom while brushing his teeth and split his chin open. Lots of screaming and blood prompted a call to 911, but he was calm and interested on the ride to the hospital in the ambulance. 5 stitches and two hours later we left the hospital.

Potty Training Sofia

We started again this week to potty train Sofia and so far it is a struggle. She's had a few successes, mostly in school. At home it's clear that she has some control but she decides to be naughty and pee on the floor when mommy and daddy go out of the room. Although she's peed on daddy a few times too.

Sofia Finger Painting at School

Sorry we haven't had many updates. Things are keeping on over here as we celebrate early Spring! Sofia has been capping non-stop up until this week when caught a little bit of sniffles. Right now are trying to keep things good with her until her surgery in 6 weeks! Daniel continues to grow and is eating a lot better recently (but still no meat).

Both kids continue to love school. Here is Sofia finger painting which is something she would never have been able to stick with doing a few months ago.