And according to the surgeon things look good and as expected. We're on track to be back home tomorrow after she recovers from the anesthesia and they give her a final checkout.
Unfortunately due to some colossal hospital miscommunication we will have to go to Yale early next week to have them take a look at and replace her G/J tube. It was supposed to happen right after the stent removal today.
We won't really know if things are going to be resolved more permanently or the course from here until we come back next Thurs for her first bronch. Still it will be good to be through this and to get back to Daniel!
Friday, July 29, 2011
OT in the hospital
As in Occupational Therapy, not overtime (we hope). Sofia got a chance to play with the therapist as we are waiting (as usual) on her surgery today which won't start until 3pm. She's happy as usual even though she can't walk as she has as IV in her foot.
Thursday, July 28, 2011
Mouth suction
Sofia loves to have her mouth suctioned as she can't swallow. She was the same way right after she got her tonsils out too.
Now rotated!
Now rotated!
Wednesday, July 27, 2011
Up and around
Monday, July 25, 2011
Sofia is almost back to herself
She still can't swallow as she has her stent in but sh'e sitting up and we had her out and walking a bit this morning. Hopefully by tomorrow she'll be off her IV antibiotics and then is mostly a waiting and healing game until her stent is removed on Fri. We're keeping her entertained with her favorite shows and games which will get trickier as she gets better and realizes she's stuck in her hospital room!

Sunday, July 24, 2011
Dora!
Playing w the peg
Sofia is more active today and playing with her peg again. She is a bit puffy so they are backing off her fluids a bit and taking her off iv morphine in favor of Tylenol and oxycodone.
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