Working Together

Sofia helped push Daniel on the ride-on firetruck toy yesterday - all while getting her g-tube feed too! She is feeling better but still not over this cold yet.

Slight delay

Well unsurprisingly given this roller coast ride we've been on so far, Sofia has come down with a mild illness so we've postponed tomorrow's scoping until the following Thursday. It's going to be right before their birthday so hopefully she'll get some good news for it!

New pool!

Thanks to freecycle we have a new kiddie pool featuring two little areas and a slide! It was warm yesterday so we took the kids out. Sofia was a bit of a fraidy-cat but after a while got into the pool and started playing. Daniel jumped in and was all over the place right away!

Sofia continues to be maxed out on her passy and we're hoping she stays good until her scoping on Tues.

Sofia Giggles

Sofia is tolerating her passy-muir valve most of the day lately (~9 hours the last few days), and her voice is getting stronger. Here she is laughing, and hiccoughing in anticipation of the tickle monster:

Mommy and Sofia

Mommy got a haircut (finally) and was captured in some photos with Sofia yesterday:

Back on the passy-horse

Sofia is back up to 4 hours on the passy and we hope she soon reaches and surpasses her former 5-5:30 hours. Her scoping is set for the 24th so it is time to start crossing your fingers!

Things have gotten better on the nursing front as we've gotten a wealth of really great and on-time nurses in the mix. Just in time as Sofia is starting to show off a little attitude, just like any 2 year old (just a few weeks to go until their birthday!)

Both kids at the park!

We passed a big milestone today and had both kids out at the park together. Daniel is really into everything now and Sofia started off a bit hesitantly but jumped into things after a while.

Sofia is back up to about an hour on her passy and we are hoping to bring her back to where she was pre-infection next week so they can scope her the week after. Another month lost but hopefully her continued growth will mean the surgeons can come up with a path off the trach soon after that.

Tag Sale

Sofia and Daniel enjoyed Mommy's tag sale find this weekend! Also, we are lucky to have 2 new nurses on our case who are making things easier for us and having fun with Sofia.

Busy Weekend

We had a busy weekend....Daddy was away and Mommy had help from Granddaddy and Grandmommy who came to visit. Daniel and Sofia took a snooze in the stroller on Sat during a long walk: