We're back from our early morning (6:30!) scoping and we finally have some results. On the plus side Sofia has no signs of reflux and on the GI side appears to be well managed. We're actually going to increase her feed as she needs some more calories to keep growing however they want to keep her more lean than just packing on weight.
However it is pretty clear she will need another reconstruction surgery as her trach walls are floppy and collapsing. She can move some air through but not nearly enough to be decannulated. There are no signs of inflammation, infection, or scarring, which pretty much means this is as good as it will get on its own.
The Drs are getting back to us with a plan sometime soon but it won't be until the Spring that the surgery can happen.
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the yang triplets: A, B, and C
2 comments:
Thanks for letting us know these results. Lots of positives along with the big negative, and now we have to trust the docs will come up with a good plan. Sofia, you will prevail!
Sofia has no signs of reflux and has good results on the GI track. Sofia needs more calories to grow is our primary concern, ask Doctors how to keep her more lean at the same time?
We all know that another reconstruction surgery of trach walls is necessary in the Spring of next year. And her trach conditions right now are as good as Doctors can expect. Overall, this is not a very bad results.
GrandPa YANG
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