After music class

The kids have a weekly music class on Fridays. We had some extra time after class today so took Sofia and Daniel walking around. Sofia loves the breezes and here she is walking a bit on her own.

More Easter Photos

Got a few extra ones of Sofia...

Happy Easter!

The kids got things rolling for Easter with their new camping chairs. They probably won't be camping for a while, (definitely not with Mommy who doesn't like it!) but they seem to be having a lot of fun in them. We also dyed eggs this morning and a had a small "hunt" before going to church. No nurse today so Sofia was with the grownups upstairs wandering around and playing with everything.

Daddy made a special dessert today and so as not to waste our hard-boiled eggs also made deviled eggs as a snack.

Happy Easter everybody!

Daniel singing

See if you can make out the song...

Preschool Set

Mommy and Daddy both went to the kids' PPTs today where we met with all of the various specialists (OT, PT, Special Ed, Speech, School Nurse) to start coming up with a plan for the fall. I'm happy to say both kids will be attending our town's special pre-school program which is great because we both strongly believe that early intervention will help them and we, of course, want to keep them together.

Up next is Sofia's three day visit to CHOP in an attempt to diagnose better whether she has a reflux issue and to come up with a surgical reconstruction plan (second try!) between their airway team and her current team at Yale. We've got a lot riding on this one! It's going to be pretty hard logistically to get the kids there but we know we need to do whatever it takes...

Walking Part 2

Sofia is walking much faster now....

Haircuts

Sofia and Daniel both got haircuts at home yesterday which was a bit traumatic for them. This was Sofia's first trim. They recovered and were happy after naps in the afternoon.