Yesterday was a really long day. Sofia started off the day by decannulating, probably because she missed having the EMTs come by! It took some doing but Daddy was able to reinsert the trach before the paramedics showed up and everything was fine. However it delayed our trip to Philly so we didn't get going until later on.
The scoping was super quick (maybe we should come late to CHOP all the time!) and a picture is below. Her airway is doing great (top two pictures)! In fact if you compare to the surgery from last April/May [http://yangtriplets.blogspot.com/2010/06/two-more-months.html] she is doing much better as it is completely open and the surgeon says it will open up even more. Sofia is building up mucuous on the new airway as well.
However (and there is always a however these days), her trach around her stoma has collapsed somewhat (suprastomal collapse on bottom two pictures). This is a direct result of having a trach for a long time. We'll know more when we go back for the next scope in two weeks but the surgeon suspects (and has suspected) that he will need to do a mini-single stage LTR right around the area. And he mentioned doing it in the SPRING (which of course Daddy immediately said well why not the summer/fall??)
Either way at this point Sofia needs more time to heal and then after the second scope we'll know more and get a plan together.
After the hospital we stopped by Grandmommy and daddys place in Philly, then hit some discount outlets for some kid clothes bargains before finally making it home late in the night. Whew!
Friday, August 5, 2011
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1 comment:
This is an encouraging news. Sofia's
airway is completely open and will open even more with building up mucous on the new airway,actually,this is a great news.
Her trach has somewhat collapsed is
not avoidable because it was placed
over there for almost three years on the tissue of premature born baby.
We may have to listen to the opinions of both doctor and surgeon at CHOP for the best way to treat Sofia.
GrandPa YANG
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