Allergic

Daddy took Daniel to the allergist today and confirmed that he is allergic to peanuts (and nuts in general) so we need to stay vigilant with his epi-pen. He also interestingly is allergic to dogs but not cats so that's good for Truffle who loves both kids very much!

He also might have an egg allergy which is contributing to his excema so we will be laying off the eggs for him as well.

Check out my jeans!

We also tried a few capping trials today and Sofia and they went well. She seems to be able to breathe in but has some difficulty breathing out. She seemed to tolerate it until she coughed it off though. This explains why she can't stand the passy (which is all about breathing out). 3 weeks to go until CHOP.

10 years on / 3 years on

We attended a homecoming service at our church yesterday, which because of the date was also partly a 9/11 remembrance (and was standing room only). 10 years ago neither of us could imagine where we would be as we and everyone else we knew were very focused in the new present reality of what it meant to live and work in NYC and America.

Likewise neither could either of us imagine that 3 years ago when Raymond passed that we would still be struggling with Sofia (but perhaps not for too much longer!) or the craziness our lives have been with just the two of them!

We hope that by next year we finally get to some "normalcy" as a family but are very thankful each day to have two happy and (increasingly) healthy kids!

First Day of School Video

And as today was their first day on the bus that's included too!

First Day of School

The kids had their first day of school this week. Here they are in their preschool classroom.





Here are some overdue birthday pics (we need to get the good ones from granddaddy!)

Happy Birthday!

The kids turn 3 today, amazing! We'll post some pics later when the grandparents come over to help celebrate!

And our next trip to CHOP is scheduled for Oct 7. The goal is to repair the suprastomal collapse and get her started on the path, finally, to decannulation. We should be in Philly for a few days for it.

Great Wall of Legos

Daniel and Sofia occupied themselves (with help from Mom) by building a great wall of Legos the other day. Kept them busy while stuck inside after Hurricaine Irene: