Sofia went all day on her cap (except when sleeping) on Fri and Sat however it seems like she is coming down with something that is clogging up her nose and so she was half cap / half passy yesterday and today all passy. That's still really good given that previously when she's had any cold symptoms we had to put her on oxygen!
We still don't have a plan from CHOP yet but are going to keep pushing the capping. We're also waiting on the ok to shift her back to 4 bolus feeds so she doesn't need her backpack during the day.
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