XMAS

We're doing lots of small xmas's this year, first with Grandma before she left, then just the four of us, right now with Grandmommy and Granddaddy, and then tomorrow with Grandpa, Uncle Tim and Aunt Karen.

Whew.

There were plenty of fun presents and food for everyone and Daddy made a duck for Xmas dinner. Also to spice things up a bit, we're also starting to potty train Sofia so she can be ready when she goes back to school on Tues.

Here are some videos:

The kids got a trampoline and here's Daniel jumping up and down on it.




Today was also a big day as we went out to a museum in the morning, then later on all went out for the first time for a family dinner. The kids were really good!



Daniel ate a ton of rice and then decided to cook up some more...

Summer 2012

After listening and taking a look at Sofia it seems likely now that she will need one last surgery next summer. They won't know for sure until they scope her in March, but it is likely that her trach site will need further repair, what he is calling a mini-LTR. While it is disappointing to have to wait longer the upside is that if this procedure is done they will completely seal off the stoma when it is completed, so there is no going back! On the other hand it means another week in Philly this summer.

In the meantime we're going to start potty training her and trying to get her to eat more food by mouth.

Towel Time

Sofia, jealous of Daniel's turn taking a bath, insisted on wearing her towel around the house.

Getting Ready

For our next trip to CHOP on Mon where we will figure out when to do a decan trial. Sofia has been a bit sick so she's been on passy for two days but yesterday afternoon went back to capping. She's recovering pretty quickly these days from her colds so hopefully this won't be an issue.