After listening and taking a look at Sofia it seems likely now that she will need one last surgery next summer. They won't know for sure until they scope her in March, but it is likely that her trach site will need further repair, what he is calling a mini-LTR. While it is disappointing to have to wait longer the upside is that if this procedure is done they will completely seal off the stoma when it is completed, so there is no going back! On the other hand it means another week in Philly this summer.
In the meantime we're going to start potty training her and trying to get her to eat more food by mouth.
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2 comments:
Summer does sound far away, but "one last surgery" has a hopeful ring. And eating real food...yumm. We're so proud of how far you all have come!
It will take time to repair any tissue on anybody,especially on
Sofia's conditions. So, it will be eventually done when doctors at CHOP
decide to do so.
GrandPa YANG
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