Happy Halloween!

From Daniel and Sofia featuring Truffle

Nursing

One of nurses had a baby so we're short nurses again. Christie and I have three night shifts this week including tonight and tomorrow night.

Even worse the nursing company knew that she had the baby but didn't notify us so we could've avoided at least one of the shifts.

We're still investigating to figure out what happened but I'm pretty sure it is just incompetence.

H1N1

The adults in the house got their vaccinations today. We're bringing the kids in in a few weeks to get theirs. Sofia just had a checkup and she's doing well except she's still dealing with some pretty bad reflux and some vomiting. Her lungs continue to improve.

Here are some pictures of Daniel with a friend. The kids playing together with Sofia off the vent. And Sofia playing with her doll.

Glasses!

We went to another eye doctor who suggested special glasses for Sofia to try to cure her strabismus. We're giving it a shot rather than trying surgery first. Here she is trying on some glasses. She's also on her HME. She up to about 8 hours a day off the vent and is 16.2 lbs today!

Daniel is doing great too, babbling and crawling all over the place.

Although he hasn't quite gotten the hang of saying "Ma" yet.

Literary

Here is Sofia reading her ladybug book. She is continuing to grow (16 lbs on our scale!) and while we took a little break on mist collar increases as she had some bad reflux. She went to see GI last week and is now also on zantac for her reflux. Things appear to be back to normal now and we are going to be increasing past 3 hrs 2x a day again.

Mist Collar

Sofia is up to 2x 3hr15min. Hopefully tomorrow she will have a good visit w/ GI and we will switch to adding an hour total each day.

I'm Big!

Sofia is now 15 and 1/4 pounds. Yay!

Mist collar trials

Sofia is doing well on trials, she's on 2x 1hr today and we're hoping tomorrow we can be back on an aggressive weaning plan to get her off the vent. We took her on her first tour of the house on Mon since we were able to put her just on an HME for a little while without the vent.

GI wise, she did vomit this morning but otherwise has been very happy. We're bringing her back in on Thurs to check up on her tummy and g-tube.

Daniel is doing well on his sleep training but has been very fussy as he is teething again.

Update

Sofia is back on her mist collar trials and is up to 30min 2x a day and is doing fine. Hopefully on Mon we can get back on the full weaning program. She's also started to eat a little bit of solid food. Here she is in her bib at the kitchen table. Everyone is eating dinner together now.



Daddy and Daniel are ready for college basketball season!



And here's Daniel posing again. We're training him to sleep through the night and it was bumpy to start but is definitely working now. He's got much more energy during the day when he gets a good night's sleep!

Standing Tall

Daniel spends most of his busy time these days crawling around the house and pulling himself up to stand on just about anything - the jumperoo, the tv stand, the couch, the hearth, the windowsill...