For the past 3 or 4 days Sofia has not been eating well. She's had one particularly bad day where she ate about half of what she was supposed to. She's also been very, very gassy which we think is the cause of the not eating. So we've toned down the amount of neosure, switched to dr brown bottles (supposedly good for gas) and a few times tried to give her some extra through a tube. This also had the side effect of venting off A LOT of gas but of course really upset her.
Unfortunately this has caused her to lose some weight, as of yesterday she was back to 14.3 lbs which is basically no gain for 3 weeks.
So her CPAP trials are continuing but not increasing past 18hrs/day. I think she's fine in her lungs but of course the Drs are nervous and want to hold steady.
The big decision will come on Mon when we bring her to Yale for a checkup.
I (Dad) am very reluctant to put in a G-tube, especially this late in the game with her trach. As simple as the Drs say it is, there are lots of additional complications = risk and cost (it will set back her oral feeding) that I don't think make sense. And maybe all of this is a normal baby not eating thing which for her is a big deal but doesn't merit overreaction.
2 comments:
I hope the situation on Sofia's
not eating will go away soon. I wonder that the weather in Northeast is very warm and stickey
for last 10 days or so
which may cause Sofia to lose fer appetite?
Has Daniel been eating well Recently?
LOVE,
GrandPa YANG
Kids definitely go through times where they just don't want to eat and then times when they seem like bottomless pits. My kids are never in sync with each other with this so it keeps me on my toes but obviously you need Sofia to eat! I hope she has gotten her appetite back already and is ready for a growth spurt soon.
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